Rchr
J-GLOBAL ID：201601001039488272   Update date: Apr. 03, 2024

Ri Izen

Ri Izen
Affiliation and department：
The Institute of Medical Science, The University of Tokyo Department of Public Policy

About The Institute of Medical Science, The University of Tokyo Department of Public Policy


Job title： Associate Professor
Research field  (1)： Sociology
Research keywords  (10)： telling, disclosure, familial communication ,  informed assent ,  predictive/preventive medicine ,  genetic disease, genetic disorder ,  genomic/precision medicine ,  birth cohort study ,  assisted reproductive technology (ART) ,  medical sociology, sociology of health and Illness ,  bioethics ,  Ethical, Legal and Social Implications/Issues (ELSI)
Research theme for competitive and other funds  (7)：
  • 2023 - 2026 A Medical Sociological Study on the Marketization of Gamete Banks and the Transformation of Value Norms Surrounding Reproduction
  • 2023 - 2023 Research on Ethical Frameworks for the Use of Healthcare Data: Focusing on the Protection of Children’s Rights
  • 2020 - 2022 新型コロナウイルス感染症(COVID-19)の倫理的法的社会的課題(ELSI)に関する研究
  • 2019 - 2022 難病ゲノム医療に対応した遺伝カウンセリングの実態調査と教育システムの構築に資する研究
  • 2019 - 2021 The Changing Rules of Genetic Testing/Genomic Analysis for Children: From the Perspective of “Risk Medicine”
Show all
Papers (9)：
  • Kaori Muto, Akiko Nagai, Izen Ri, Kyoko Takashima, Sachie Yoshida. Is legislation to prevent genetic discrimination necessary in Japan? An overview of the current policies and public attitudes. Journal of Human Genetics. 2023
  • Izen Ri, Junichi Kawata, Akiko Nagai, Kaori Muto. Expectations, concerns, and attitudes regarding whole-genome sequencing studies: a survey of cancer patients, families, and the public in Japan. Journal of Human Genetics. 2023. 68. 4. 281-285
  • Akiko Nagai, Izen Ri, Kumiko Fujisawa, Kaori Muto. Disclosure of information about COVID-19 cases by the local government of Japan from January to August 2020. Japanese Journal of Public Health. 2022. 69. 7. 554-567
  • Izen Ri. Prediction and Prevention of Hereditary Cancer : How Patients are Introduced in Genetic Testing. The Japanese Journal of Health and Medical Sociology. 2021. 32. 1. 34-44
  • Izen Ri. Telling Genetic Risk Within the Family: Toward the Development of a Cross-disease Study. The Japanese Journal of Health and Medical Sociology. 2019. 30. 1. 65-75
ｍore...
MISC (9)：
  • Izen Ri. Handling of Genetic Information in the Workplace: Social and Ethical Perspectives. Journal of Occupational Health Law. 2023. 2. 1. 126-130
  • 李怡然, 武藤香織. Ethics and rights in HBOC and genomic medicine onwards. 医学のあゆみ. 2023. 284. 6. 469-473
  • 全ゲノム解析等実行計画におけるELSI・PPIの取り組みと課題. Clinical Neuroscience. 2022. 40. 9. 1161-1165
  • 武藤 香織, 井上 悠輔, 藤田 卓仙, 東島 仁, 磯部 哲, 山本 龍彦, 小川 有希子, 河嶋 春菜, 永井 亜貴子, 井口 高志, et al. 成果発表イベント「コロナELSIナイト」の開催および情報保障について. 厚生労働行政推進調査事業費補助金(新興・再興感染症及び予防接種政策推進研究事業)「新型コロナウイルス感染症(COVID-19)の倫理的法的社会的課題(ELSI)に関する研究」 分担研究報告書. 2022. 163-172
  • 武藤 香織, 永井 亜貴子, 李 怡然, 藤澤 空見子. COVID-19と偏見・差別. 厚生労働行政推進調査事業費補助金(新興・再興感染症及び予防接種政策推進研究事業)「新型コロナウイルス感染症(COVID-19)の倫理的法的社会的課題(ELSI)に関する研究」 分担研究報告書. 2022. 103-114
ｍore...
Books (2)：
  • Telling hereditary cancer risk: Familial communication in Japan
    2023 ISBN:4779517842
  • Hereditary Breast and Ovarian Cancer: Molecular Mechanism and Clinical Practice
    2021 ISBN:9811645205
Lectures and oral presentations  (35)：
  • Proposals for resolving issues of genetic counseling for intractable diseases
    (日本人類遺伝学会第67回大会 2022)
  • Genomic research/medicine for children: What issues should be considered
    (55th McGill - RIKEN IMS Symposium 2022 2022)
  • 社会的・倫理的観点からのコメントー遺伝情報の取り扱いをめぐって(シンポジウム3 職場における遺伝情報の取扱いと対応の実際~遺伝性腫瘍の仮想事例からの接近~)
    (日本産業保健法学会第2回学術大会 2022)
  • Awareness, expectations, and concerns regarding whole-genome sequencing studies: a survey of cancer patients, families and the public in Japan
    (European Society of Human Genetics (ESHG) 2022 2022)
  • 認知症関連疾患の当事者等が直面するであろうELSI:診断・治療から発症予測と予防的介入の時代へ(ラウンドテーブルディスカッション 木矢幸孝、渡部沙織、李怡然、武藤香織 「医学研究のELSI(倫理的法的社会的課題)を考える」)
    (第48回日本保健医療社会学会大会 2022)
ｍore...
Professional career (1)：
  • Ph.D. (Interdisciplinary Information Studies) (The University of Tokyo)
Work history (6)：
  • 2024/04 - 現在 The Institute of Medical Science, The University of Tokyo Department of Public Policy, Human Genome Center Associate Professor
  • 2021/01 - 2024/03 The Institute of Medical Science, The University of Tokyo Department of Public Policy, Human Genome Center Assistant Professor
  • 2019/04 - 2024/03 General Medical Center Saitama Medical University, School of Nursing Part-time Lecturer
  • 2023/08 - 2023/12 Health Ethics & Policy Lab, Department of Health Sciences & Technology, ETH Zürich Visiting scholar
  • 2019/04 - 2020/12 The Institute of Medical Science, The University of Tokyo Human Genome Center, Department of Public Policy Project Research Fellow
Show all
Awards (2)：
  • 2023/10 - Japanese Society of Public Health Excellent paper award Akiko NAGAI, Izen RI, Kumiko FUJISAWA, Kaori MUTO. Disclosure of information about COVID-19 cases by the local government of Japan from January to August 2020. Nihon Koshu Eisei Zasshi(JAPANESE JOURNAL OF PUBLIC HEALTH), 69(7): 554-567. 2022
  • 2019/05 - The Japanese Society of Health and Medical Sociology 13th Sonoda Award (The Japanese Journal of Health and Medical Sociology-FY2018) “The Right Not to Know” in the Era of Genomic Medicine
Association Membership(s) (4)：
The Japan Society of Human Genetics ,  The Japanese Society of Health and Medical Sociology ,  The Japanese Society of Public Health ,  The Japan Association for Bioethics
※ Researcher’s information displayed in J-GLOBAL is based on the information registered in researchmap. For details, see here.

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