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J-GLOBAL ID：201802245107802248   Reference number：18A0226472

Population-based biobank participants’ preferences for receiving genetic test results

遺伝子検査結果を返還に関する集団ベースのバイオバンク参加者の選好

Author (10)： YAMAMOTO Kayono (Iwate Medical Univ., Iwate, JPN) ,  HACHIYA Tsuyoshi (Iwate Medical Univ., Iwate, JPN) ,  FUKUSHIMA Akimune (Iwate Medical Univ., Iwate, JPN) ,  NAKAYA Naoki (Tohoku Univ., Sendai, JPN) ,  OKAYAMA Akira (Res. Inst. Strategy for Prevention, Tokyo, JPN) ,  TANNO Kozo (Iwate Medical Univ., Iwate, JPN) ,  AIZAWA Fumie (Iwate Medical Univ., Iwate, JPN) ,  TOKUTOMI Tomoharu (Iwate Medical Univ., Iwate, JPN) ,  HOZAWA Atsushi (Tohoku Univ., Sendai, JPN) ,  SHIMIZU Atsushi (Iwate Medical Univ., Iwate, JPN)
Material： Journal of Human Genetics  (J Hum Genet)
Volume： 62  Issue： 12  Page： 1037-1048  Publication year： Dec. 2017 
JST Material Number： Z0756A  ISSN： 1434-5161  Document type： Article
Article type： 原著論文  Country of issue： United Kingdom (GBR)  Language： ENGLISH (EN)

Thesaurus term： *genetic technique ,...
Semi thesaurus term： *Genetic Testing ,...

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JST classification (1)： Public health  (GB02000X)

Reference (37)：

• Wolf, S. M., Crock, B. N., Van Ness, B., Lawrenz, F., Kahn, J. P., Beskow, L. M. et al. Managingincidental findings and research results in genomic research involving biobanks & archived datasets. Genet. Med. 14, 361-384 (2012).
• Knoppers, B. M., Deschenes, M., Zawati, M. H. & Tasse, A. M. Population studies: return of research results and incidental findings Policy Statement. Eur. J. Hum. Genet. 21, 245-247 (2013).
• Kaufman, D., Murphy, J., Scott, J. & Hudson, K. Subjects matter: a survey of public opinions about a large genetic cohort study. Genet. Med. 10, 831-839 (2008).
• Bollinger, J., Bridges, J. F. P., Mohamed, A. & Kaufman, D. Public preferences for the return of research results in genetic research: a conjoint analysis. Genet. Med. 16, 932-939 (2014).
• Regier, D. A., Peacock, S. J., Pataky, R., van der Hoek, K., Jarvik, G. P., Hoch, J. et al. Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment. CMAJ 187, 6 (2015).

Terms in the title (6)： 遺伝子検査 ,  返還 ,  集団 ,  バイオバンク ,  参加者 ,  選好