Rsrc
J-GLOBAL ID:201910016915214154   Research Resource code:NBDC02406 Update date:Feb. 12, 2019

RADDAR-J: Rare Disease Data Registry of Japan

難病プラットフォーム: Rare Disease Data Registry of Japan
Owning Organization:
  • RADDAR-J
Resource classification: Database
Tag (subject)  (2): Genome/Gene ,  Health/Disease
Tag (data type)  (1): Bibliography/Documents
Species (1): Homo sapiens (NCBI Taxonomy ID: 9606)
Overview:
The RADDAR-J site was constructed for consolidating and supporting registry studies about intractable diseases covered by the Practical Research Project for Rare/Intractable Diseases of the Japan Agency for Medical Research and Development (AMED) and the Research Project on Rare/Intractable Disease of the Ministry of Health, Labour and Welfare (MHLW). It provides document templates required for the construction and operation of intractable disease registries.
Users can browse the list of intractable disease registries or search with keywords, and data collected by RADDAR-J may be available for secondary use for research.
Source: NBDC

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