Research Resource code：NBDC02406
Update date：Feb. 12, 2019
RADDAR-J: Rare Disease Data Registry of Japan
難病プラットフォーム: Rare Disease Data Registry of Japan
Tag (subject) (2)：
Tag (data type) (1)：
Homo sapiens (NCBI Taxonomy ID: 9606)
The RADDAR-J site was constructed for consolidating and supporting registry studies about intractable diseases covered by the Practical Research Project for Rare/Intractable Diseases of the Japan Agency for Medical Research and Development (AMED) and the Research Project on Rare/Intractable Disease of the Ministry of Health, Labour and Welfare (MHLW). It provides document templates required for the construction and operation of intractable disease registries.
Users can browse the list of intractable disease registries or search with keywords, and data collected by RADDAR-J may be available for secondary use for research.
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