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J-GLOBAL ID：202002239669973021   Reference number：20A0670508

Evaluating the Patient-Reported Outcomes Measurement Information System scales in acute intermittent porphyria

急性間欠性ポルフィリン症における患者報告転帰測定情報システムスケールの評価【JST・京大機械翻訳】

Author (15)： Naik Hetanshi (Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY, USA) ,  Overbey Jessica R. (Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA) ,  Montgomery Guy H. (Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA) ,  Winkel Gary (Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA) ,  Balwani Manisha (Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY, USA) ,  Anderson Karl E. (Department of Preventive Medicine and Community Health, University of Texas Medical Branch, Galveston, TX, USA) ,  Bissell D. Montgomery (Department of Medicine and Liver Center, University of California, San Francisco, CA, USA) ,  Bonkovsky Herbert L. (Department of Medicine (Section on Gastroenterology & Hepatology), Wake Forest NC Baptist Medical Center, Winston-Salem, NC, USA) ,  Phillips John D. (Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA) ,  Wang Bruce (Department of Medicine and Liver Center, University of California, San Francisco, CA, USA) ,  McGuire Brendan (Department of Medicine, University of Alabama-Birmingham, Birmingham, AL, USA) ,  Keel Sioban (Division of Hematology, University of Washington, Seattle, WA, USA) ,  Levy Cynthia (Department of Medicine, University of Miami, Miami, FL, USA) ,  Erwin Angelika (Genomic Medicine Institute, Cleveland Clinic, Cleveland, OH, USA) ,  Desnick Robert J. (Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY, USA)
Material： Genetics in Medicine
Volume： 22  Issue： 3  Page： 590-597  Publication year： 2020 
JST Material Number： W1813A  ISSN： 1098-3600  Document type： Article
Article type： 原著論文  Country of issue： Germany, Federal Republic of (DEU)  Language： ENGLISH (EN)

Abstract/Point： Abstract: Purpose: Acute inte...

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Thesaurus term： *pain ,  quality of life ,  population(statistics) ,  sleep disorder ,  depression(disease) ,  regression model ,  base line ,  interference ,  depression(symptom)
Semi thesaurus term： 単変量解析 ,  *急性間欠性ポルフィリン症 , 【Automatic Indexing@JST】

Author keywords (4)： acute intermittent porphyria ,  quality of life ,  PROMIS ,  patient-reported outcomes

JST classification (1)： Metabolic diseases,nutritional diseases in general.  (GD05010J)

Terms in the title (7)： 急性間欠性ポルフィリン症 ,  患者 ,  報告 ,  転帰 ,  測定情報 ,  スケール ,  評価