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J-GLOBAL ID：202202269071354134   Reference number：22A1025067

Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes

CARE原理を実装するための固有標準の利用:Tribal研究コードによる期待の設定【JST・京大機械翻訳】

Author (14)： Carroll Stephanie Russo (1Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States) ,  Carroll Stephanie Russo (2Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States) ,  Garba Ibrahim (1Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States) ,  Garba Ibrahim (2Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States) ,  Plevel Rebecca (2Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States) ,  Plevel Rebecca (3Library and Information Sciences, School of Information, University of Arizona, Tucson, AZ, United States) ,  Plevel Rebecca (4Law Library, School of Law, University of South Carolina, Columbia, SC, United States) ,  Small-Rodriguez Desi (5Department of Sociology, College of Social Sciences, University of California, Los Angeles, Los Angeles, CA, United States) ,  Small-Rodriguez Desi (6American Indian Studies Program, College of Social Sciences, University of California, Los Angeles, Los Angeles, CA, United States) ,  Hiratsuka Vanessa Y. (7Center for Human Development, College of Health, University of Alaska Anchorage, Anchorage, AK, United States) ,  Hudson Maui (8Te Kotahi Research Institute, University of Waikato, Hamilton, New Zealand) ,  Garrison Nanibaa' A. (9Institute for Society and Genetics, University of California, Los Angeles, Los Angeles, CA, United States) ,  Garrison Nanibaa' A. (10Institute for Precision Health, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, United States) ,  Garrison Nanibaa' A. (11Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, United States)
Material： Frontiers in Genetics (Web)
Volume： 13  Page： 823309  Publication year： 2022 
JST Material Number： U7071A  ISSN： 1664-8021  Document type： Article
Article type： 短報  Country of issue： Switzerland (CHE)  Language： ENGLISH (EN)

Abstract/Point： Biomedical data are now organi...

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Thesaurus term： data ,  data management ,  database ,  *project ,  gene ,  utilization
Semi thesaurus term： 遺伝学研究 ,  生物医学研究 ,  生物医学 ,  データ共有化 ,  大規模データベース , 【Automatic Indexing@JST】

Author keywords (5)： genetic research ,  Indigenous ,  data sovereignty ,  data governance ,  CARE principles

JST classification (3)： Medical information processing  (JE15030Q) ,  Computer networks  (JC03000K) ,  Documentation  (EA01020H)

Reference (58)：

• Around HimD., Andalcio AguilarT., FrederickA., LarsenH., SeiberM., AngalJ. (2019). Tribal IRBs: A Framework for Understanding Research Oversight in American Indian and Alaska Native Communities. Am. Indian Alsk. Native Ment. Health Res. 26 (2), 71-95. doi: 10.5820/aian.2602.2019.71
• Australian Institute of Aboriginal and Torres Strait Islander Studies (2020). AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research. Canberra, Australia: AIATSIS. Available at: https://aiatsis.gov.au/sites/default/files/2020-10/aiatsis-code-ethics.pdf (Accessed January 19, 2022). doi: 10.5820/aian.2602.2019.71
• BoyerB. B., MohattG. V., PaskerR. L., DrewE. M., McGloneK. K. (2007). Sharing Results from Complex Disease Genetics Studies: a Community Based Participatory Research Approach. Int. J. Circumpolar Health 66 (1), 19-30. doi: 10.3402/ijch.v66i1.18221
• CarrollS. R., Rodriguez-LonebearD., MartinezA. (2019). Indigenous Data Governance: Strategies from United States Native Nations. Data Sci. J. 18 (31), 1-15. doi: 10.5334/dsj-2019-031
• CarrollS. R., GarbaI., Figueroa-RodríguezO. L., HolbrookJ., LovettR., MaterrecheraS., et al (2020). The CARE Principles for Indigenous Data Governance. Data Sci. J. 19 (43), 1-12. doi: 10.5334/dsj-2020-043

Terms in the title (6)： 原理 ,  実装 ,  固有 ,  標準 ,  研究 ,  期待